Beginnings

I'm starting this blog because I need an outlet. I don't know if anyone will ever read it, but even if I'm the only audience, it will be worth the effort.

I am a mother of two boys, the older of whom has multiple disabilities. Due to extreme prematurity, he lives with cerebral palsy, hydrocephalus, and severe visual impairment. He uses a walker to ambulate, cannot feed himself, is almost completely nonverbal, and is legally blind. He is also extremely intelligent, possesses a keen sense of humor, and has questionable taste in music.

Every day, my family is doing the seemingly impossible. We are fighting to have our local school district accommodate our son in the general education program. We are expecting him to be educated up to his mental rather than his physical potential. And we are meeting resistance every step of the way.

We are fighting to give both our sons the love and attention they need, and to give them as typical a life as possible. We are working to nurture our younger son so that he does not feel overshadowed by his brother's needs.

We are fighting to keep our marriage alive and well in the midst of tremendous stress.

We are doing the impossible, one day at a time.

I need a place to write the unvarnished truth of our life, in all of its beauty and ugliness. I hope this blog will be that place.